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Hope:  Conquer fear - take action, learn, get involved

Knowledge is very incomplete about this condition and conclusions based on statistics don't apply to each individual case.

Rather than see yourself as one of many, you might want to look at your condition as idiosyncratic and keep doing everything you can to promote a healthy mind and body. 

If you had a parent or sibling who became very disabled because of MJD, that doesn't mean that MJD will cause the same things to happen to you. The expression of this disease is often very different even among members of the same family.

One of the greatest sources of hope for you might be to see yourself as an integral part of this funding effort.

Fund Raising:  we need volunteers who are ready to take action

We need people who are willing to send letters or give newsletters to their friends, relatives, doctors and neighbors. Remember you're not asking for yourself, but for a nonprofit that is trying to help thousands of people around the world. And, donors receive a tax-deduction for all contributions. If you are willing to help, let us know and we'll send you all the materials you'll need.

CREATIVE WAYS TO RAISE FUNDS  

HOLIDAY GIFTS - consider giving a donation to Ataxia MJD Research Project in honor of someone - we will send them a holiday acknowledgement card.

Birthday party or anniversary- instead of gifts, guests bring donations to the party

Raffle off some of your crafts, woodwork or art at gatherings

Have a yard sale and donate the proceeds to Ataxia MJD Research Project, Inc.

Donate appreciated stock and avoid capital gains tax - CONTACT US FIRST FOR DETAILS 

PLEASE ASK YOUR POLITICAL REPRESENTATIVE TO FUND MJD (SCA3) RESEARCH VIA GOVERNMENT GRANTS.

We need your help. Please contact us today. Working together, we can help scientists put an end to MJD and similar conditions.

Send mail to ataxiamjd@earthlink.net with questions or comments about this web site.
Copyright © 2004 Ataxia MJD Research Project, Inc.
Last modified: August 08, 2007